I know some of you who read are wondering what's going on with Addison. We are still waiting to hear all the results from the metabolic testing - should know something hopefully this evening or tomorrow. This is a genetics thing and any of you who know anything about genetics know it is confusing!!!
Concerning to momma is the fact that she has started diarrhea diapers again. Poop never meant so much to me. Pray for those to cease!
Kate is doing well through all of this - we have gotten so off schedule and honestly it may be a while before things calm down. One milestone we hit last Friday coming to the hospital to pick up mommy and baby Addison - the WHY QUESTIONS!!! There are lots of why's in her life right now, so I guess it was fitting.
Why? Why? Why? - wish I knew!!
Tuesday, October 27, 2009
News...
Posted by Robertson's at 1:50 PM 6 comments
Saturday, October 24, 2009
Addison
I'm sure that most of you who read my blog regularly have already heard on Tuesday night we had basically the same event happen that was described in my previous post. Chris said he liked how I detailed things in that post, but I don't think I can relive it again, so I'll just give you the facts without all the emotion - sorry if that is boring!
Addison has been diagnosed with FPIES- Food Protein Induced Enterocolitis Syndrome. This is a very rare allergy of soy, dairy and rice - possibly more later. Unlike an anaphylactic allergy that is responsive to epinepherine (epi-pen) FPIES is not. If she ingests, we will have episode like the last two and immediately must call 911. Her BP goes low and she needs IV fluids, etc. at the hospital to recover. In talking with the allergist Friday, it appears that Addison is on the extreme end of FPIES - it is really scary and dangerous. I will become the organic allergy mom! One encouraging note, some kids grow out of FPIES around 3 - that's our prayer.
This journey is not over due to the metabolic tests. Initially the genetics doctor did not think her high levels were worrisom, but they continue to be elevated. After re-testing Friday morning, her pyruvate and lactate levels are elevated and in the critical levels. A Genetics doctor discussed with us keeping her and beginning work ups to see what is going on metabolically or going home, resting and seeing/talking to him on Monday - hardest decision I've made, but her little body had no more veins to poke and she needed a break (so did momma and dadddy). He feels that the levels should have normalized in this time frame. This is all very confusing, but hopefully we will have more answers soon. We were instructed to return to the ER if she presents with any atypical behavior. Pray for her safety and peace! Thanks for the prayers! We know God is in control!
Over the past two weeks God has been showing me how He worked this out. I'm not quite ready to post of all God did to prepare me and provide the best care available to Addison, but soon I will detail it out - it is so awesome how God goes before us and prepares the way!
Posted by Robertson's at 4:59 PM 2 comments
Sunday, October 18, 2009
In the blink of an eye...

Posted by Robertson's at 6:40 PM 20 comments
Labels: Addison
Friday, October 16, 2009
Addison is home!
You may or may not know that we've been in the hospital since Tuesday - got home this afternoon. Haven't had much sleep - brain still isn't working that great, but praise God Addison is doing better. It truly was a scary time. Just wanted to say thanks to those of you who prayed Tuesday night and have continued. I'll give the full story soon, but pretty exhausted at the moment.
Posted by Robertson's at 5:09 PM 4 comments
Labels: Addison
Saturday, October 10, 2009
There's this guy...
Who is extremely sleep deprived and finds himself missing the last 5 minutes of any show (wait, he doesn't have time to watch television) he is watching. 
Misses his girls tons when he is working, but makes the most of every moment with them.

And looks really um, "HOT" in a white coat - especially a long one!
Chris, Daddy we love you and miss you so much. Thanks for working so hard to take care of us and even though life right now seems impossible most of the time you could not make us any more proud. WE LOVE YOU!
Posted by Robertson's at 10:15 PM 4 comments
Friday, October 2, 2009
keepin it real...and two beautiful girls
Okay, so I have totally dropped the ball on "my plan" - life's too short to dwell though, right!!! So, here is a quick catch up on the Robertson's and hopefully I'll get back on track with blogging! Chris was on vacation the last full week of September - loved every minute of it. He started Wards on October 1 - urgh! He only has three days off for the month, three overnight calls, four long calls (late evening) and a two day retreat - single parenting at its best!! - just kidding, well kind of anyway. He is all here when at home and is the best daddy in the world. These hours are killing him, but he knows God has a plan for him. Addison was 3 months on the 22nd of September and Kate is approaching 2 1/2 at the end of the month. A friend from church told me about a dance class her little girl is in and they needed a couple more little girls to keep the class, so Kate joined. She loves it so far and is so stinkin cute. Her teacher is one of the minister's wife's at our church. Isn't God great! Addison is giggling and smiling so much. She is a bit spoiled - colicky baby = spoiled baby, but she's definitely a keeper. I took them to have their pics made today and I fell in love all over again. Here are a few.


Posted by Robertson's at 9:10 PM 2 comments
Friday, September 18, 2009
Thursday's Thoughts....Ha! Ha!
So on Wednesday I was having a "I'm bored with my blog" moment and decided to take an adventure and try to organize every day by theme - my thoughts are totally not going to happen. So, in saying that I'm going back to my old ways. I am going to try to show more of our crafts and "school" type of activities and plan to use the tot school blog to assist in this - it really is a cool blog. I am going to weigh in on Wednesday's and continue to give tips, etc. This helps keep me accountable and hopefully will help others along the way. There you have it - I am crazy! Those of you who know me in real life know that and know my big aspirations, at least reality hit rather quickly yesterday - won't give you a play by play, but it was a stressful day!!
In great news - Chris starts vacation today after he gets off of work - YEAH! We are going to take the girls to Hot Springs for the night - thought that would be fun. Kate has never stayed in a hotel. Tuesday after bible study we are heading back to OK! We are so excited.
Hope everyone has a great weekend! I'll see you next week, not so scheduled : )
Posted by Robertson's at 8:34 AM 2 comments
Labels: Blog business, family, motherhood
