This year Thanksgiving meant a little more. I am thankful for my sweet precious little girl, Addison who has blessed the socks off of our family. Pray for her as we go for more blood work on Monday. All her test results came back and she has elevated pyruvate, lactate and some fatty acids are also elevated. The pyruvate and lactate are being repeated and a second test is being run to tell us more about the fatty acids. It could all be due to diarrhea, but they have to rule out any other issues.
Kate is thankful for...
Daddy
Mommy
Addison
Daddy
Mommy
For having a trip
I'm so thankful for Kate and her spunkiness, Chris and his devotion to our family and my family for their support during these hard times - THANKS!
Friday, November 27, 2009
I'm thankful for...
Posted by Robertson's at 10:33 AM 1 comments
Labels: Addison, holidays, Kate, motherhood
Wednesday, November 18, 2009
Forever changed...
November 13th marked the one month anniversary of Addison's first episode. Over the past month life has completely changed and I have been forever changed. I have not been checking email, blogging, even communicating with the world except for a few close friends. I needed time to digest all of what went on and needed time to sort things out. I have been at my parents house for two weeks on Thursday - wow, long time away from home. Chris has been working 15 hour days and has had four 30+ hour shifts since I have been away. I cannot say thank you enough to those of you who have continued to lift our family up in prayer - we still need it!
Addison is doing well and will celebrate 5 months on the 22nd of November - time truly does fly. Her almost two week stay in the hospital did us in on sleeping and eating, but I figure eventually things will work back out. She is having more labs done on the 23rd to re-check her lactate and pyruvate levels and I received a call today saying they are adding one more panel of tests - not sure what, the doctor is supposed to call and explain. Addison has become a very happy and playful baby, has two bottom teeth and LOVES her mommy!
Kate has started asking more questions recently about Addison's episodes. Just tonight she was talking to me about trying to help me be patient on the way to the hospital. She is slowly working through things as best as a two year old can. She is so excited about moving into our new rent HOUSE the first weekend in December. It will be nice to finally have a place with a yard to play in.
For me, the biggest issue I face is trust. Some people take Addison's diagnosis of FPIES seriously while others seem to think of it as any other allergy. Both are equally bad and life-threatening, it is just that FPIES is so rare most doctors do not even know what they are dealing with. Addison's allergy doctor told me I would probably always know more than a doctor seeing Addison in an emergency room- scary! Addison has to have IV fluids and must be closely monitored if she ingests anything with soy, milk, or rice - rarest thing ever. Her body goes into "shock". - low blood pressure, etc.
Chris is working hard and needs prayer. I know God has a plan and purpose for our family even in the midst of hardship. Never before has life seemed so scary, unsure and INSANE - but God is bringing us through!
God Knew...
Chris cancelled his rotation to ACH three times during his fourth year of medical school, to end up rotating in September of last year and loving it
In the hush hush process of ranking, Chris ranked OU OKC ahead of ACH (to be closer to family) and right before he submitted he just looked at me and said it's not right - I assured Chris we would be ok and to follow God's direction - there are no accidents!
Addison was born at just the right time. I was able to have excellent care from my doctor (placenta acreta with both babies) but all of her health care has been in Arkansas with the most amazing pediatrician.
After Addison's second episode we were almost dismissed and I was actually told by an attending to quit entertaining the thought of it being an allergy - how dare her! That was the only thing out of the ordinary on both days that Addison had an episode. To make a long story short, a new doctor saw Addison the day we were to be dismissed without a diagnosis and she immediately knew what it was - her friends child (who is also a resident at ACH) has FPIES as well - now you cannot tell me that is a coincidence!
There are so many ways that God has shown Himself to us during this time. He chose to allow Addison to continue to bring happiness to us on this earth. I cannot say I know what it feels like to lose a child, but I can say I know what it feels like to think you lost a child. I have never pleaded with God about anything like I did on the way to the hospital on October 13th - the words, Jesus don't take my baby poured from my mouth and please God protect her. I'm sure Kate thought I was crazy but I didn't know what else to do - the worse feeling I have ever felt.
I am returning home in a few days and I know life is going to be complicated with residency and establishing a "new" normal, but I feel like I'm ready for the challenge again after visiting with friends from Tulsa and getting time to take care of myself with the help of family. Thanks to all of you who held us close. Word traveled fast and I know the prayers from even strangers were heard by God - Thank you!
Forever Changed...
Posted by Robertson's at 8:02 PM 8 comments
Labels: Addison, FPIES, motherhood
Tuesday, October 27, 2009
News...
I know some of you who read are wondering what's going on with Addison. We are still waiting to hear all the results from the metabolic testing - should know something hopefully this evening or tomorrow. This is a genetics thing and any of you who know anything about genetics know it is confusing!!!
Concerning to momma is the fact that she has started diarrhea diapers again. Poop never meant so much to me. Pray for those to cease!
Kate is doing well through all of this - we have gotten so off schedule and honestly it may be a while before things calm down. One milestone we hit last Friday coming to the hospital to pick up mommy and baby Addison - the WHY QUESTIONS!!! There are lots of why's in her life right now, so I guess it was fitting.
Why? Why? Why? - wish I knew!!
Posted by Robertson's at 1:50 PM 6 comments
Saturday, October 24, 2009
Addison
I'm sure that most of you who read my blog regularly have already heard on Tuesday night we had basically the same event happen that was described in my previous post. Chris said he liked how I detailed things in that post, but I don't think I can relive it again, so I'll just give you the facts without all the emotion - sorry if that is boring!
Addison has been diagnosed with FPIES- Food Protein Induced Enterocolitis Syndrome. This is a very rare allergy of soy, dairy and rice - possibly more later. Unlike an anaphylactic allergy that is responsive to epinepherine (epi-pen) FPIES is not. If she ingests, we will have episode like the last two and immediately must call 911. Her BP goes low and she needs IV fluids, etc. at the hospital to recover. In talking with the allergist Friday, it appears that Addison is on the extreme end of FPIES - it is really scary and dangerous. I will become the organic allergy mom! One encouraging note, some kids grow out of FPIES around 3 - that's our prayer.
This journey is not over due to the metabolic tests. Initially the genetics doctor did not think her high levels were worrisom, but they continue to be elevated. After re-testing Friday morning, her pyruvate and lactate levels are elevated and in the critical levels. A Genetics doctor discussed with us keeping her and beginning work ups to see what is going on metabolically or going home, resting and seeing/talking to him on Monday - hardest decision I've made, but her little body had no more veins to poke and she needed a break (so did momma and dadddy). He feels that the levels should have normalized in this time frame. This is all very confusing, but hopefully we will have more answers soon. We were instructed to return to the ER if she presents with any atypical behavior. Pray for her safety and peace! Thanks for the prayers! We know God is in control!
Over the past two weeks God has been showing me how He worked this out. I'm not quite ready to post of all God did to prepare me and provide the best care available to Addison, but soon I will detail it out - it is so awesome how God goes before us and prepares the way!
Posted by Robertson's at 4:59 PM 2 comments
Sunday, October 18, 2009
In the blink of an eye...

Posted by Robertson's at 6:40 PM 20 comments
Labels: Addison
Friday, October 16, 2009
Addison is home!
You may or may not know that we've been in the hospital since Tuesday - got home this afternoon. Haven't had much sleep - brain still isn't working that great, but praise God Addison is doing better. It truly was a scary time. Just wanted to say thanks to those of you who prayed Tuesday night and have continued. I'll give the full story soon, but pretty exhausted at the moment.
Posted by Robertson's at 5:09 PM 4 comments
Labels: Addison
Saturday, October 10, 2009
There's this guy...
Who is extremely sleep deprived and finds himself missing the last 5 minutes of any show (wait, he doesn't have time to watch television) he is watching. 
Misses his girls tons when he is working, but makes the most of every moment with them.

And looks really um, "HOT" in a white coat - especially a long one!
Chris, Daddy we love you and miss you so much. Thanks for working so hard to take care of us and even though life right now seems impossible most of the time you could not make us any more proud. WE LOVE YOU!
Posted by Robertson's at 10:15 PM 4 comments
